You know how sometimes, no matter how hard you seem to try and how much work you put into making sure that you get everything as close as humanly possible to perfect, your levels are still a nightmare?

At various times since I’ve been a diabetic, I find that my levels seem to get a mind of their own and go totally haywire with complete disregard to the amount of effort that I put in.

I’m a fairly active sort of person so I don’t have endless time at my fingertips (pun intended) to be able to test incessantly but I always make sure that I carb count everything that I can when it’s possible by weighing it on scales (I don’t trust average servings) and being as attentive as possible to alcohol, exercise and so on. That said, despite all this, sometimes I just don’t seem to be able to get it right.

It makes me wonder:

  1. How many hypos does a normal, average Joe/Jane diabetic have in a week
  2. If you had to choose between having highs or lows, what would you choose? And why?
  3. Where do you draw the line between having great control and having a life that isn’t ruled by the regimen of testing, counting and juggling? That must be a real challenge for parents of T1 kids right?

My diabetes nurse has told me several times that I should be having no more than 1-2 hypos a week on a pump which sounds simultaneously idyllic and totally unachievable. Or, is it?

Like I said,  these things come in waves and right now, everything is going super well but…there are those times that I don’t seem to be able to not go low or high. Personally, I’d rather be lower because it doesn’t inflict the same long-term health damage as being high, it’s easier and faster to fix and it doesn’t make me feel so sick overall but how do you guys do it and what is normal for adults? At what point do we say that we are doing good enough?

According to Aaron Kowalski (which isn’t a pseudonym I promise – he is actually research director of the Artificial Pancreas Project at JDRF which Nic talked about in her post ‘A New artificial pancreas in the making‘):

“Even the most sophisticated people with diabetes only spend 30 percent of the time in their blood sugar range, and it’s often much less than that.”

I would love to know what he defines as the ideal range but it does raise the questions for me…where is the ground between what’s ideal and what’s realistic?

- Aaron

P.S. For those of you know know I’m a twin, the title has nothing to do with that!


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…. ok, ok – I’m sure there are a few of you witty ones who were thinking of drug references when you saw this headline…. not so, I’m sticking with the diabetes for now.

I was on the phone to a woman the other day. She has an eight month old son with type 1, and I’ve had several chats with her over time about what it’s like. One of the things she mentioned to me in our recent conversation is that she has some, but ultimately not very much, idea of what it’s like to have high blood sugars. There is a limit to how well her young son can articulate it, and of course she can’t feel it herself, being a person with a working pancreas. (Jealous, much?! :) )

I thought about this and wondered how I would describe it. Given that I spent years of my teens and twenties in a state of hyperglycaemia, I’m sure I am a bit more de-sensitised to it than some of you! I generally feel: thirsty; tired; have a headache; sometimes feel a bit nauseous and heavy on my feet.

How about you? Drop us a comment in the comments box (please) so we can hopefully articulate this as a community!


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You know how sometimes, no matter how hard you seem to try and how much work you put into making sure that you get everything as close as humanly possible to perfect, your levels are still a nightmare?

At various times since I’ve been a diabetic, I find that my levels seem to get a mind of their own and go totally haywire with complete disregard to the amount of effort that I put in.

I’m a fairly active sort of person so I don’t have endless time at my fingertips (pun intended) to be able to test incessantly but I always make sure that I carb count everything that I can when it’s possible by weighing it on scales…

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Last week I mentioned a book I’d read about from a 23 year old guy in the UK who’d had type 1 diabetes since he was 13: Joe’s Rough Guide to Diabetes.

I promptly downloaded the e-book (which I encourage you to do, it was only about NZ$10) and set about reading it.

My review:

A very easy read, it only took me a few hours to finish it.
Would be perfect if you have a teenager with type 1 diabetes.
Loved the mantra he used, “I am my own best doctor” – so true!
The ‘biology

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…. is illegal now in NZ as we all know. However, what about bolusing and driving?

Yesterday I was in Ponsonby to have coffee with a friend. I was on my way home, sitting at the traffic lights near Three Lamps. I first of all did a BG test while I sat there. It was ever so slightly on the high side so I then reached down to my pump to program in a correction bolus.

It was at this point that I realised that I was sitting bang, smack outside the Ponsonby Police station. And a policeman was just locking up his patrol car in the carpark about 5m from where my car was sitting. Before he could…

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OK, now that I’ve got your attention, I have a request to ask of you. (Sorry, there are no free insulin pumps and consumables…. but we are going to try to at least get the MoH to consider subsidising both, or just the consumables).

A friend of mine, Ruth Hill, is getting together an Application for Funding to the Ministry of Health for insulin pumps and consumables. Here is her message, below:

Right people. I URGENTLY NEED YOUR HELP. I want to make an Application for Funding to the Ministry of Health. I need emails/letters from as many people as possible explaining how your life has or would be drastically improved by the best Type 1 diabetes management out there…

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