I am so very very lucky!! At the start of the year I rolled up my sleeves and started applying anywhere I could think of for funding for an insulin pump. I was lucky enough to have been loaned one by National Womens hospital for the purpose of getting my HbA1c lowered enough to safely conceive, and then to keep it as low as possible (if not even lower) during my pregnancy. The deal with National Womens is that you get to keep the pump up until six weeks after you’ve delivered your baby, then you have to give it back.
Going back to injections didn’t appeal to me (there’s a reason I went on the pump in the first place, the long-acting and short-acting combos just weren’t working for me on MDI), so I set about trying to get even partial funding, while doing my best to save, save, save in the background.
By the time I found out I was pregnant in March, I had researched about 40 organisations, and applied to about ten (most of them required you to be a group, and many of them stated explicitly that they wouldn’t fund medical equipment). The waiting game was on.
As this was happening, I found out that the ‘rent to own’ scheme North Shore Hospital had been setting up with ten Cozmo pumps was floundering a little. The legals and other bureaucracy required to set it up had proven a little too difficult, so they decided to instead put them into a pool of loan pumps which they would allocate to people who applied. I wrote them a letter that evening and posted it off the next morning.
By May, I’d been turned down by almost everyone, except the good old Lions, who pledged $400. Good on you Lions!! It may have been a small percentage of the $7,000 I had to raise but I was thrilled that they had read my letter and responded with a bit of help.
By June, all I had left was the NZ Lotteries to hear from. I finally chased them up, only to be turned down. My plan to raise enough money in the background to buy a pump by the end of the year was looking a bit shaky too after a few unexpected house-related expenses and the convenient flare up in my mouth which lead to a $2,000+ root canal operation! It was starting to look like I was going to have to go back to injections again.
I’d been routinely chasing up North Shore Hospital but every month they’d tell me a decision was going to be made by the end of the next month. I’d more or less filed that chance away in my head as well.
Then – the day after I had my baby, I was sitting there in my hospital bed, in a rare moment of quiet (there were always a cast of thousands coming in and out of my room, between visitors and hospital staff) and my phone rang. It was Waitemata Health calling to say I’d been allocated one of the loan pumps! WICKED!! Couldn’t have come at a better time!
So – I’ve had to sign a contract which underwrites my devotion to the cause of maintaining a good HbA1c etc etc, and I will be subject to routine checks on my HbA1c to make sure this is the case, and if it’s not they have the right to take it back off me. Initially I thought this was a bit harsh but I can totally see their point – an insulin pump attached to you does not a good diabetic make…. it’s by no means the silver bullet to good control – it takes hard work and dedication. Undoubtedly of the ten people who have one of these loan pumps, there will be one or two who find pumping is not for them.
Meanwhile – a HUGE thank you to Waitemata DHB. You have allowed me to keep the control I worked so hard to achieve over the last year and a half, and on top of that you have allowed me to avoid trying to find $7,000 which would have ultimately meant I’d have to go back to work several months earlier than planned, leaving my baby boy in day care at a younger age. I really feel like I’ve won the lottery.
Posted in Funding, Insulin Pumps
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12 comments have been made on this post
Kris wrote
Yay – especially good that you get to stay longer at home with Hugo!
Trudi wrote
YEEEHHHAAAAAA!!! That is just the best news, absolutely stoked for you. Great to see all your hard work rewarded in the end. Nice one Waitemata.
Kathy wrote
That’s great news Nic. I am so glad for you. You’ve put a lot of effort into this and I congratulate you that your persistence has paid off. All the best.
Amanda wrote
Well done.
Fantastic, you’ll have more time with Hugo.
Interesting that Waitemata demand you maintain a decent control in order to keep their
pump. And, why not? Maybe other health boards could do the same thing.
Nic wrote
Once again I am overwhelmed at the kindness of the readers of this blog – thanks to you all for your lovely comments. I am lucky in so many ways! x
Sianne wrote
Wow Nic, thats awesome news. Hope everything is going well with you and Hugo.
Emma J wrote
Good news on getting a pump – a women in my community fund raised to buy herself an insulin pump – she had an art auction, movie night and quiz night to raise the money.
tash wrote
wow, thats brilliant!!! well done waitamata! Why is this not available else where???
As the mum of an 18 month old with type 1, wading thru the thick of the funrasing for pumps, What I would like to know is that if is clearly recognised that pump therapy provides the best possible control for a pregnant woman and there fore the best possible out come for a baby, why is it not recognised as the best treatment available for types ones full stop!!!!
Jade wrote
Hi
was interested in knowing what they expect your hba1c to be to be able to keep your loan pump.
Nic wrote
They didn’t set specific numbers…. the wording is:
“Continued use of the pump will be reviewed annually by the insulin pump health care team and clinical benefit will be assessed by: improvement towards or maintenance of, your target glycaemic range; improvement in the clinical indicators for which you were referred for pump therapy”